Friday, February 19, 2010

State of the Neurons

*Neurons (c) IMB Labs

Today was the neurological follow-up to Evy's testing. The doctor started the conversation off by reviewing what I had told him about Evy's seizures and "neuro-ticks." Didn't seem like the kind of thing to do if the tests showed all clear.

The MRI was fine. There were no physical abnormalities on the MRI that would explain what happened or is happening. No signs of an aneurysm or a brain tumor. The EEG, however, did show seizure activity. In all, we have come to the conclusion that Evy experiences generalized seizures, specifically absence seizures. It isn't a clear science particularly in someone as young as Evy. We will start him on medication today.

Hopefully, since his brain is so young, preventing the seizures will allow the brain to, in a sense, heal and prevent the need for lifelong use of anti-seizure medication. Or, the condition is heredity and he may grow out of it. At this time, he'll be on medication, twice a day, for two years. The medication does have side-effects. So, we'll be going in for a blood test in three weeks and then routinely go in for a blood test every three months.

If all has been posited correctly, he should fall less and not have any "illness" related seizures while he is on his medication. (One of my concerns has always been how much he falls when he is running, standing still, whenever. For awhile I just attributed it to clumsiness and his delay in motor skills. Now, his falling makes more sense.)

And, we have determined that he never had febrile seizures. It is more likely that Everett has been experiencing this generalized seizure disorder since at least a year old and those febrile seizures were grand mal seizures triggered by illness or fatigue.

We are grateful. Evy, despite being premature, has had relatively few long-term issues. He is bright, cheerful, inquisitive, and ever sensitive to others.

In the elevator going to the doctor, another couple stepped into the car with us, and Evy slid over to Merritt's stroller, stroked Merritt's head, and said,"Don't worry, I'll protect you." He is a sweet boy.