Good news from the neurologist today! He thinks it is time to try and wean Evy off his anti-seizure medication.
In order to do that, we are going to need to do a video monitored EEG. Which means he'll be admitted to the hospital, hooked up to an EEG machine for 24-48 hours. This will track the seizure activity as he comes off his medication and will tell us if there is any seizure activity. He'll be video taped the entire time. Since one of his parents will be with him, too, we have to make sure to remember to not pick our noses . . . unless we want someone to watch us picking our noses.
Really not looking forward to needing to go this route to determine the next step. Would rather just have a regular EEG and see how things go. But, in the end, Heavenly Father will provide what we need because we doing our best to provide for Everett.
One of the things I have come to have an extremely firm belief through this is that parents really do know their kids. I saw this when I was a teacher. Sometimes, I had to *really* listen to what they were saying to get the intent of what they were saying in order to remedy a situation. But, when I did that, the situation always improved. Several people poo-pooed me when I took Everett into the neurologist the first time when he was one. "Febrile seizures are no big deal."
I was right to do it. I was right to take him in again, when he was three, even though most wrote it off as another one of his febrile seizures. Seizures are complicated things. The brain, as much as we know about it, is a complicated organ. Oddly, when I was talking to his neurologist a year ago, I felt slightly comforted that he was as concerned as I was about some of the things I had noticed. Not because I wanted there to be a problem with Everett, but I kind of wanted some indication of how cuckoo I may or may not be. I wasn't. The doctor listened and I witnessed a tremendous level of development in Everett once his medication was at a therapeutic level.
He is still hesitant around water. He'll go into the water now without holding our hand. At the same time, I read a book with Everett about being baptized at the age of eight, and from that point on, at random moments, he'll say, "I don't want to be baptized." And, it is because the idea of going underwater terrifies him, still. (Erik and Everett were dropping off a thank you note at a neighbor's house and in the middle of the conversation, Everett says,"I don't want to be baptized." Poor kid; it is still bothering him.)
I am praying that his brain has had enough seizure-free time to heal so that he can be seizure free.
Just as we were leaving the neurologist, Everett said that he needed to ask the doctor a "qweshtion." Erik tracked the doctor down in his office and Evy said,"I have a cough." Poor guy. I bet he was wondering why we went to the doctor today and didn't say a thing about what has been immediately bothering him so much.
On the way home from the neurologist, we talked about living things. Everett started the conversation by asking me if "trees are alive, cars are alive, food is alive, bears are alive, tater tots are alive . . . ." We talked about how some things are made by God and some things are made by man. Only things made by God can have life (in the way he was defining it). God gives life.
"That's pretty good to know."